Posts Tagged ‘How to Survive a Plague’
A lover’s lies
Over the last month, I’ve been listening endlessly to 50 Song Memoir, the sprawling autobiographical album by Stephin Merritt of the Magnetic Fields. Like much of his work, it’s both technically exquisite and cheerfully uneven, with throwaway novelty tracks alternating with songs that I don’t think I’ll ever forget, but it’s clearly a landmark in the career of one of our indispensable artists. One of its best features is a thick accompanying booklet, in which Merritt walks his good friend Daniel Handler through the stories behind all five discs. It’s totally fascinating, both for its insights into craft and for its uncharacteristic moments of introspection. But it also includes an anecdote, which Merritt shares only in passing, that has been on my mind a lot, particularly in light of what I’ve been discussing over the last few days:
[The song] “Lovers’ Lies” is a boyfriend who, it later turned out, was a pathological liar. Dale Peck has a whole chapter about him. Apparently he went out with Dale Peck before he went out with me, which I didn’t know at the time…So he allowed everyone to believe that he was HIV-positive, because he was an AIDS activist, and it just seemed simpler. But he was not in fact HIV-positive, and eventually that got out, and he became a pariah, persona non grata, and had to leave the area.
Handler doesn’t ask for further details, and the conversation quickly moves on, leaving the story to stand enigmatically by itself. And the song doesn’t add much to the picture.
Merritt doesn’t mention any names, but he provides more than enough information to identify the individual under discussion, who is also thanked in the liner notes to one of his side projects. (I don’t particularly feel like naming him here, either, so I’ve quietly edited some of the passages that follow.) Dale Peck—a literary critic whom I previously knew best for calling Rick Moody “the worst writer of his generation”—tells the story in his book Visions and Revision, a long excerpt of which appeared a few years ago in Out. In his memoir, Peck recalls that the activist “was the first person I slept with who told me he was HIV-positive,” and that he also claimed to have been the son of a Holocaust refugee, a survivor of English boarding schools and mental institutions, and the victim of a beating in Boston. But after cataloging his friend’s remarkable background, Peck concludes:
Everything I’ve just told you is a lie. The Judaism—the Holocaust—the move to England and the nervous breakdown, the time spent in a mental institution and hustling on the streets, and above all the HIV infection: Every last detail—save, perhaps, his name—was a fabrication, invented for who knows what reason and perpetuated with some major or minor variations not just with me but with all of ACT UP…I don’t believe it was empirically necessary for [him] to adopt the identity of an HIV-positive person in order to become the kind of AIDS activist he became. But he did, and he immersed himself in his role to such a degree that he put himself at risk.
And he was no ordinary fabulist. Peck tells us that he was “also one of the nine or ten most important AIDS activists in the United States,” and in David France’s How to Survive a Plague, we hear more about the scale of this ongoing act of impersonation:
It was thought that he was the sickest member of the HIVIP support group—he had testified as an AIDS patient under oath before Congress and issued a famous dictum to fellow activists, “HIV Negatives Get Out of Our Way”—but in fact he had never been infected at all. David Barr, the support group founder, pieced together the deception through inconsistencies in his stories, the vagueness about his doctor visits, his secrecy about lab results. I was incredulous when confronted with these facts…For almost a decade I watched him partake in some of the most instrumental skirmishes that revolutionized science and medicine. I watched his work save lives. He could have accomplished as much as an openly HIV-negative man.
And France’s thoughts on the reasoning behind this deception are particularly significant: “What drove him, I guessed, was a peculiar kind of thrill-seeking behavior. There was no more immediate battle in this epic war than the one to survive. For young men it was an almost romantic race against time. I can imagine, but not fully understand, a compulsion to feel those stakes very personally.”
Peck makes a similar point in his memoir: “From the beginning of the epidemic part of the fascination with AIDS was the desire to have it. To live with it? To die from it? I suspect it’s probably neither, which is to say, I suspect the HIV these men wanted was the phantasmic kind that brings ‘meaning’ to life rather than sickness or pain or death.” And it makes for a striking contrast with an argument advanced by Susan Sontag in AIDS and Its Metaphors, which was published toward the end of the eighties. After noting that such diseases as tuberculosis and syphilis have been romanticized for their associations with emotionality or creativity, to the point of creating “syphilis envy,” Sontag writes: “But with AIDS—though dementia is also a common, late symptom—no compensatory mythology has arisen, or seems likely to arise. AIDS, like cancer, does not allow romanticizing or sentimentalizing, perhaps because its association with death is too powerful.” Sontag was clearly wrong about this, and it’s even possible to recognize this impulse in more recent cases of activists who altered or embellished aspects of their identities—some blatantly, others less so—in what Eve Fairbanks of Buzzfeed calls a mindset “that makes having endured harrowing circumstances seem almost necessary to speak with any moral authority.” But it may have been something even more fundamental. As Peck writes of one pivotal moment:
[The activist] said he had something to tell me and even as I guessed from his tone what it was he said: “I’m positive.” I use quotation marks here because I know these were his actual words: I recorded them on a piece of yellow paper ripped from a legal pad that I later tucked into a new journal. I was a sporadic journaler at best, usually starting one when I felt that something momentous had happened, and I knew that something momentous had happened here. Not that I had slept with an HIV-positive person, but that I had met someone great. Someone about whom I need manufacture none of my usual illusions to love.